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Rare cancer: ovarian clear cell carcinoma

Gynecologic Cancers | Last Active: Jun 18, 2023 | Replies (122)

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@theblondecherie

Thank you so much for your response. That is such great news that you had such an amazing experience at Mayo Clinic, AZ and that you are in remission. I am so happy for you. I sent you a private message wondering if you would be willing to share the name of your oncologist there. Did you do your surgery at Mayo clinic as well or just your treatments? This is where I have focused my European (ESMO - Oncology Pro). Also, I lived in France for the last 10 years, so I have discussed my diagnosis with friends in the oncology world over there. I really appreciate you sharing your story about your experience at Mayo, AZ. It sounds like such a positive one.

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I hope it is ok to share the names of my MayoAZ oncologists. Dr, Camoiano, gyn/oncologist and Dr. Magrina, gyn/oncology surgeon. Almost all of my treatments were at Mayo, including surgeries and chemos, then when I went home to Hawaii, my additional treatments were carefully outlined and supervised from Mayo. In addition, I received a presentation of what to, what to eat, how to exercise, when to be tested, etc., etc., a great follow up system. I still get blood draws monthly, for CA125 and HE4S, cancer indicators whose results are sent to Mayo. My Mayo oncologists then comment on the results.
Very happy to share any information!