Hello. I know you from other sites and I am glad to see you've joined this one. The OCCC group is small. I continue to do research on this histology. Much of the research is out of Asia, particularly Japan where it far more prevalent. The NCCN guidelines for patients changed its standing in 2019 with regards to OCCC claiming that "treatment of theses ovarian cancers is beyond the scope of this book." In the medical version, they do address specific treatment. Their recommendations now seem more in line with ESMO, the European version as well as the Canadian approach. While research is done in the States, it seems limited compared to elsewhere. Funding for OVCA is lacking in general, and for clear cell seems even more so.
I know that you are doing well, thankfully. The Mayo Clinic is excellent in their care. I grew up going there. Stay in touch. If you come upon any interesting news, I'd love for you to share it. Progress is being made so we can be hopeful.