Hello! I also was diagnosed with ovarian cancer, but 3c, over a year ago and was treated at Mayo, AZ. I have been in remission for 9 months. I wonder if we were treated by the same extraordinary oncologists. Don’t think I can mention their names. Your great attitude is what helps your recovery. I am also striving towards those goals and a metabolic life style, as recommended at Mayo. Keep up the good work! I am on metformin, how about you?

Hello. I know you from other sites and I am glad to see you've joined this one. The OCCC group is small. I continue to do research on this histology. Much of the research is out of Asia, particularly Japan where it far more prevalent. The NCCN guidelines for patients changed its standing in 2019 with regards to OCCC claiming that "treatment of theses ovarian cancers is beyond the scope of this book." In the medical version, they do address specific treatment. Their recommendations now seem more in line with ESMO, the European version as well as the Canadian approach. While research is done in the States, it seems limited compared to elsewhere. Funding for OVCA is lacking in general, and for clear cell seems even more so.
I know that you are doing well, thankfully. The Mayo Clinic is excellent in their care. I grew up going there. Stay in touch. If you come upon any interesting news, I'd love for you to share it. Progress is being made so we can be hopeful.

Hello Stacy, I am also Stacie and thank you for sharing your story. May I ask did you have your surgery at Mayo. I am currently in the process of getting second opinions. Thank you for any information you would feel comfortable sharing. I am happy to hear you are doing well.
All the best,
stacie