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Rare cancer: ovarian clear cell carcinoma

Gynecologic Cancers | Last Active: Sep 5 5:36pm | Replies (125)

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@carleenburch

Hi Molly~ I am so very sorry to hear about your diagnosis. I am fighting clear cell carcinoma right now too and have been for 1.3 years. I was told I didn't have cancer either until my biopsies came back. The problem with the clear cell, as you know, is that the doctors can't visually see it until it is a mass and it does not show up in your regular blood work. Once you have a baseline with your CA 125 it can alert you of possible growth. My oncologist believed that he got it all out with my second surgery and suggested that I do 6 rounds of carbo/taxol regimen just as to be safe. I started chemo 4 weeks after my second surgery. I would encourage you to do the chemo since the doctors can not see clear cell carcinoma. I did not want to have any regrets. My cancer came back after only three months and I am continuing to fight it!! I'm only 49 and want to see my grand babies grow up. I believe that I am here still because of the treatments I have and continue to do. This is a crazy, serious, aggressive cancer and needs to be treated!! Please reach out to me if you want to talk more in depth.

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