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Rare cancer: ovarian clear cell carcinoma

Gynecologic Cancers | Last Active: Sep 5 5:36pm | Replies (125)

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@janice1106

I didn’t ever tell you how sorry I was for your diagnosis and recurrence. This clear cell is not FUN!! My doctor at Oregon’s OHSU MEDICAL CENTER has talked to me about a vaccine ( I think it’s called vacivir)!trial that is very promising, but I don’t have a large enough tumor to qualify. Maybe it would work for you.

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Replies to "I didn’t ever tell you how sorry I was for your diagnosis and recurrence. This clear..."

I'm sorry it's taken me so long to respond. It's been a little crazy....I'm getting ready to start radiation. The chemo is not working at all for me and there is not a lot of options right now. We're going to try radiation!! Thank you so much for your kind words...I appreciate them!! As far as what I do for emotional support....right now I have a great network of friends that are walking through this with us. However, my doctors office has put me in contact with COCA (Colorado Ovarian Cancer Alliance) and they have monthly support groups I am reaching out to. I am also thinking about doing some counseling/therapy. When your looking at a terminal illness it jacks with your mind. Some days I can't seem to focus on anything!!! I am sure the state your in has some organization for ovarian cancer.