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Rare cancer: ovarian clear cell carcinoma

Gynecologic Cancers | Last Active: Sep 5, 2024 | Replies (125)
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@carleenburch

Hi. I was diagnosed in 11/17 with Stage IC. I underwent 6 rounds of platinum based chemo and at my first 3 month check up the cancer reoccurred. This means I am platinum resistant. Any other women out there that are platinum resistant?

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Replies to "Hi. I was diagnosed in 11/17 with Stage IC. I underwent 6 rounds of platinum based..."
odette | @odette | Dec 16, 2018

I am so sorry this has been your experience. I do not have any advice to offer, but there are many women on-line that may have words of advice to give you (Inspire, Cancer Connect, etc). I hope you are getting good care and that you will overcome this difficult time.

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janice1106 | @janice1106 | Dec 27, 2018

I too am in the same place you are. I was diagnosed with stage 1A OCCC in Feb. 2018, went through 6 rounds of Taxol and Carboplatin. Although my numbers are good and CT is okay, my doctor removed what she call a granuloma from my vaginal cuff. The pathology came back Clear Cell cancer. They have sent it in for Molecular Testing. Right now I just feel helpless. I don’t know where to go for treatment that has actually worked. If anyone has suggestions or has been through this, please respond.

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