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odette (@odette)

Rare cancer: ovarian clear cell carcinoma

Gynecologic Cancers | Last Active: Nov 24, 2020 | Replies (117)

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@kenwood1

I would be interested in hearing what reaearchers say about OCCC. I just signed up for a walk to support ovarian cancer in PHX on Dec 2nd.

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Replies to "I would be interested in hearing what reaearchers say about OCCC. I just signed up for..."

When I was first seen and then diagnosed, I signed up to participate in several research studies at the medical facility where I received care. I also had genetic testing done and am now part of an ongoing study there as well. I read medical research articles on-line and I contact doctors/researchers with questions. People can be very responsive. It helps to be informed.

Just wondering how you are doing. I recently had an appointment and all was well, fortunately. Prior to an appointment, I experience a great deal of anxiety although it seems a bit more manageable as time goes by. My oncologist did not recommend joining a "support group" following treatment as my circumstances are so different, I guess. After feeling very isolated at times, I joined this group as well as other on-line sites. Although I have "met" several women who have similar circumstances to mine, many of them have serious challenges to face. I find that I empathize so much with them, I become distraught at times. Many of them are significantly younger (I am in my early 60s). I continue to pursue my understanding of OCCC which is rare, but research is being done. It is associated with endometriosis so I am very interested in this condition as it afflicts all of the women in my family.
We are actually visiting Arizona this winter as a possible retirement location as we have friends and relatives in the Tucson and Scottsdale areas. One of our criteria is excellent medical care which is available at the Mayo Clinic in Scottsdale. The warm weather is certainly appealing as well.
I hope that you are doing well.

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