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Possible Adrenal Issues

Diabetes & Endocrine System | Last Active: Jul 8, 2019 | Replies (21)

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@rckj

@mrmie
I have secondary adrenal insufficiency and my disorder is managed by the Mayo Clinic in Rochester, Minnesota. I live on the east coast and visited Mayo for consultation last summer. I am returning for further consultation this summer. My endocrinologist at Mayo is Dr. Alice Chang. Choosing to go to Mayo was the best decision my husband and I could have made regarding my health situation. They set up a completely different and very effective action plan for both daily management and management of emergency situations (adrenal crisis). They were kind and extremely helpful both with the adrenal dysfunction and other conditions I have which affect the primary disorder. I highly recommend them.I saw endocrinology first and then they added in other specialists for the other conditions. It can be a bit of a whirlwind as they try very hard to manage all aspects of your medical condition during the time you can be there but at the same time it was so helpful! I am returning for followup due to some unexpected complications and am confident they will be able to improve my situation. Your listed symptoms sound similar to mine, especially during the early stages of my problems but I'm not a medical doctor so I strongly recommend Mayo. I couldn't get answers where I live despite it being a major city with well known hospitals. Mayo had the answers, the treatment plans and the resources. They also coordinated with my primary care team and continue to do so. They have also been available to me as needed. From my perspective, going to Mayo was both life saving and vastly improved my quality of life. What else can I answer? I'm available and happy to answer any questions or concerns that I can. I wish you all the best. Rhoda

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Replies to "@mrmie I have secondary adrenal insufficiency and my disorder is managed by the Mayo Clinic in..."

Thank you @rckj for your response! I'm so glad Mayo has been helpful for you. Currently I'm waiting for a referral to another doc. With the waxing and waning of my symptoms over the years, I'm wondering if I have an isolated ACTH deficiency. My cortisol was 8 a year ago with a proper response to ACTH stim test. My endo said my cortisol was normal. I actually became worse a few months after that but had no cortisol drawn. My cortisol level was 17 last month which makes sense since I am able to do house chores and enjoy getting out some. It just seems like once I hit a certain level of activity, my body can't keep up and I relapse to the point of barely able to shower and it takes months to recover to just half of what I was. I thought I could handle a part time job this past Spring but relapsed a month later. So I'm on a mission for answers but I feel in order for my bloodwork to show anything, I will have to fall into a serious relapse. Thanks for listening Rhoda!

@mrmie happy to hear from you and wishing you all the best. Hope we can stay in touch. Rhoda.