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Non-diabetic lumbosacral radiculoplexus neuropathy

Neuropathy | Last Active: Sep 4, 2023 | Replies (24)

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@sher456

I woke in the night with a sharp pain in my low back, the next day it went across my hip and into my groin and by the following night I couldn’t walk, sit or lay down. No position was comfortable and the pain increased 10-fold. I went to the emergency room 3 times and was hospitalized for a week but they couldn’t find a cause. It took five months before I was referred to a neurologist and was diagnosed with non-diabetic LSRPN 18 months ago and continue to have ongoing symptoms: numbness in foot, sensory pain on top of foot and up my shin, nerve pain, severe muscle spasms in foot, leg and hip; my quadriceps also “burn”. My leg feels heavier and heavier as the day goes on and sometimes I have foot drop if I’ve done too much, which isn’t a lot compared to my “norm”. Wearing shoes is difficult, and wearing jeans or pants make my leg feel that much heavier. My iliacus muscle in my hip has never relaxed since the onset of this affliction. Time, physio and massage with a healthy dose of meds have been part of the recommended treatment plan for me. I would love to hear from other members who have had this or are going through it!

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Replies to "I woke in the night with a sharp pain in my low back, the next day..."

Welcome to Connect @sher456. I'm tagging @steeldove to see if he is able to share any on Microvasculitis in non-diabetic lumbosacral radiculoplexus neuropathy (LSRPN). I'm also tagging @kruppm and @jeffbrewer to see if they are able to share any suggestions with you. I can't imagine how difficult it must be to deal with the symptoms on a daily basis.

Have any of the recommended treatments been helpful for you?