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DiscussionWhat are other survivors doing about pancreatic enzymes replacement?
Pancreatic Cancer | Last Active: Aug 16 8:07pm | Replies (111)Comment receiving replies
Replies to "That's an interesting idea, thank you. We've probably talked to five different Mayo nutritionists at various..."
@fassbinder EXACTLY! We still have been trying to get to a pancreatic or at least a digestive cancer specialist dietician because the advice we receive even from the pancan surgical team is the generic, "use the Creon, take ensure, take protein supplements ..." But what are you supposed to be doing when those things cause the vomiting and severe diarrhea?
In my wife's case, the chemo caused temporary changes in tastes that made food taste vile but it lasted only a few days. Something about the surgery, whether the loss of multiple organs or the side effects of the anesthesia, epidural and pain meds, made food so vile that she immediately spit it out or gagged it up. That lasted over a month. No one has acknowledged what else to do. Now 2 months later these reactions have subsided for well-prepared foods but continue for anything like ensure or other supplements. We're really seeking a detailed dietary meal plan that I can prepare for her that provides enough nutrition and variety.