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What to do when you've tried everything?
Epilepsy & Seizures | Last Active: Feb 7, 2020 | Replies (11)Comment receiving replies
Dear History Girl,
I have frankly been on every single Epilepsy medication, and nothing works worth a damn, and I am so tempted to frankly give up on my book entitled "Misunderstood and Resilient", because those of us whom suffer from years of constantly being treated as a "PSYCHIATRIC PATIENT, or a "NUTCASE", you start to believe it yourself!!!!! I am honestly about to get relief; as I even my current Neurologist I saw today, thinks it's also "PSYCHOLOGICAl", for the twenty millionth time! I have become so numb to being seen as a "PSYCHIATRIC PATIENT", that I just want to leave the United states; as no-one in Israel, will have access to my medical records, therefore i can finally have some relief WITHOUT ANXIETY, DISCRIMINATION, and frankly being "BRANDED" like a "COW"!
Bye for now!
Sincerely,
Shelley
Replies to "Dear History Girl, I have frankly been on every single Epilepsy medication, and nothing works worth..."
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Don’t give up. When my son was getting treatment in Boston, the so called “specialist “ literally was scratching his head and had no clue what to do. He would only recommend trying other cocktails of meds. Things got really bad there. We had to sign a release to get him out of there but before we were able to go, a psychologist who only observed my sons behavior from outside in a hallway for an hour determined that it was psychological issues my son had and that we basically were part of the problem. It was the most insulting words I’ve ever heard. We left and went to the Mayo Clinic in Rochester, MN. It was like heaven on earth. They treated us with respect and compassion and also took care of my sons issues. He’s now been seizure free for 8 years. Epilepsy is complicated and varies but just keep going. Find the right doctor. Best of luck.