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What to do when you've tried everything?

Epilepsy & Seizures | Last Active: Feb 7, 2020 | Replies (11)

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@12271997

You might need a new neurologist. There are many different meds out there. I would stop calling them grand mal because it means the biggest sickness in French. The brain has many different areas in it and each part handles something different. I hope you're documenting what someone tells you happened duration and effects Did any of your tests show where the seizures were coming from? I know what you mean about driving I absolutely hate it that I have to rely on someone to take me somewhere. My over 3000 seizures came from a lesion on the left temporal lobe b/c my mom had a fever when she was pregnant with me. The left temporal lobe's lesion caused me to have complex partial seizures. My short term memory reasoning sequencing and right now I'm having problems with speech-aphasia or mine is anomia words are on the tip of my tongue. I'm going to see a speech pathologist in Aug. VNS is available shocks sent to brain and I ended having a left temporal lobe lobotomy and removal of left hippocampus but that's a last resort. I'm trying to say there are other options

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Replies to "You might need a new neurologist. There are many different meds out there. I would stop..."

I agree I do need another neurologist. I've gone to three neurologists already and I thought the recent one would be good, but he's been my neurologist for 3 years now and hasn't really done something different from the other ones. I've done several EEGs and I've had several CAT scans and recently got an MRI done. On my EEGs it shows my brain waves are abnormal however never have I been told what side they are coming from. Also my CAT scan and MRI show nothing so I'm still having seizures but have no clue what is causing them.