1. < Chronic Pain

Nerve Pain

Posted by nmo2016Aliana @nmo2016, Jul 9, 2018

Hello, I have been diagnosed with NMO and I have really bad nerve pain around my abdomen. It has my back in pain and my right side. I have tried several pain meds and nothing is giving me any relief. Does anyone have any suggestions?

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lioness | @lioness | Jul 9, 2018

@nmo2016 what is NMO? What did Dr. Say? Is it Shingles? Can you explain more about this

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nmo2016Aliana | @nmo2016 | Jul 9, 2018

@lioness no it's not shingles. Neuromyelitis Optica (NMO) is a central nervous system disorder that primarily affects the eye nerves and the spinal cord. It occurs when your body's immune system reacts against its own cells in the central nervous system and mainly in the optic nerves and spinal cord, but sometimes the brain. I am taking a drug called imuran that help to suppress my immune system. I have a spot on my brain and spinal cord which now is slowly decreasing.

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3 replies
lioness | @lioness | Jul 9, 2018
In reply to @nmo2016 "@lioness no it's not shingles. Neuromyelitis Optica (NMO) is a central nervous system disorder that primarily..." + (show)
@nmo2016

@lioness no it's not shingles. Neuromyelitis Optica (NMO) is a central nervous system disorder that primarily affects the eye nerves and the spinal cord. It occurs when your body's immune system reacts against its own cells in the central nervous system and mainly in the optic nerves and spinal cord, but sometimes the brain. I am taking a drug called imuran that help to suppress my immune system. I have a spot on my brain and spinal cord which now is slowly decreasing.

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@nmo2016 Thanks for the information I'm glad the medicine he is shrinking the spot.

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sdemaria | @sdemaria | Jul 9, 2018
In reply to @nmo2016 "@lioness no it's not shingles. Neuromyelitis Optica (NMO) is a central nervous system disorder that primarily..." + (show)
@nmo2016

@lioness no it's not shingles. Neuromyelitis Optica (NMO) is a central nervous system disorder that primarily affects the eye nerves and the spinal cord. It occurs when your body's immune system reacts against its own cells in the central nervous system and mainly in the optic nerves and spinal cord, but sometimes the brain. I am taking a drug called imuran that help to suppress my immune system. I have a spot on my brain and spinal cord which now is slowly decreasing.

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Its nice to hear its decreasing!!!!

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nmo2016Aliana | @nmo2016 | Jul 9, 2018
In reply to @nmo2016 "@lioness no it's not shingles. Neuromyelitis Optica (NMO) is a central nervous system disorder that primarily..." + (show)
@nmo2016

@lioness no it's not shingles. Neuromyelitis Optica (NMO) is a central nervous system disorder that primarily affects the eye nerves and the spinal cord. It occurs when your body's immune system reacts against its own cells in the central nervous system and mainly in the optic nerves and spinal cord, but sometimes the brain. I am taking a drug called imuran that help to suppress my immune system. I have a spot on my brain and spinal cord which now is slowly decreasing.

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You're welcome and thank you!

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grandmaR | @grandmar | Jul 15, 2018

Hi All....
Friday I went for an EMG as one part of the tests I am taking to try to determine why my legs have gotten so week.
The doctor performing the test said my nerves are VERY angry.
She also said I was chronic, but acute!
Fun!
Tomorrow I am going to a vascular doctor. Not sure what she will be doing.

At the end of the month I will go back to the neuro-surgeon to review all the test results and try to come up with a plan.
BTW...… Fell again yesterday. Luckily, I grabbed on to my car to prevent me from hitting the ground. Twisted my body, again. I am sitting in my chair with a hot pad and taking pain meds. Last time I fell, It took about 3 or 4 weeks to heal. Oh my!!!!

Ronnie (GRANDMAr)

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russy | @russy | Dec 20, 2018

I take generic Nerotin for nerve pain in my hips. It helps tremendously.

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1 reply
@sharon | @sharonalllen | Dec 20, 2018
In reply to @russy "I take generic Nerotin for nerve pain in my hips. It helps tremendously." + (show)
@russy

I take generic Nerotin for nerve pain in my hips. It helps tremendously.

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posted by @sharon in responce to@russy

Yes Nerotin is for nerve pain, however my condition, is Spasticity, is a condition itself and stopping the pain alone does not stop the the muscles for staying spastic.
only Baclophen will do that,l so I am told by the experts.

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bkruppa | @bkruppa | Dec 20, 2018

Anyone have any experience with PNE (Pudendal Nerve Entrapment)? So my wife has been dealing with this for years and we have been to many, many doctors and tried other procedures with no success at all. . Very disappointing that nothing has helped.

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1 reply
Moderator
Lisa Lucier, Moderator | @lisalucier | Dec 21, 2018
In reply to @bkruppa "Anyone have any experience with PNE (Pudendal Nerve Entrapment)? So my wife has been dealing with..." + (show)
@bkruppa

Anyone have any experience with PNE (Pudendal Nerve Entrapment)? So my wife has been dealing with this for years and we have been to many, many doctors and tried other procedures with no success at all. . Very disappointing that nothing has helped.

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Hi, @bkruppa - here is a discussion on Mayo Clinic Connect you may want to check out: Pudendal Nerve Entrapment/Neuropathy/Damage https://connect.mayoclinic.org/discussion/pudendal-nerve-entrapmentneuropathydamage

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