← Return to Chronic Kidney Disease (CKD): How do I stop progression?

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@lisalucier

Hi, @marvinjsturing. Welcome to Mayo Clinic Connect. Sounds like you've had quite a journey thus far with the chronic kidney disease (CKD) and other conditions. Good to hear that the deterioration of your kidneys stopped after the Atypical Hemolytic Uremic Syndrome (aHUS) was treated.

Hoping that here you can meet @rosemarya @bdade59 @shiteh @katem @cehunt57, and that they will have some input on your situation as you look at possible future dialysis and kidney transplant.

How are you feeling about the prospect of potential dialysis in the future?

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Replies to "Hi, @marvinjsturing. Welcome to Mayo Clinic Connect. Sounds like you've had quite a journey thus far..."

After having pancreatic cancer, I thank God everyday that I am still alive. When dialysis becomes necessary, I will do it because it will help me to enjoy the life I have. Because of my Whipple procedure, I will not be able to do peritoneal dialysis. I had fistula surgery 2 1/2 years ago. My family physician says I should go to a dialysis center (there is one 8 miles from home) but my nephrologist says I am a good candidate for home hemodialysis. I have already attended a class on hone hemodialysis at Da Vita. What is most frustrating for me is that the diet for diabetes does not match my diet for CKD.

@marvinjsturing, I admire your strength and your attitude. It sounds to me that you are staying on top of your care by educating yourself for what might lie in your future.
I found a discussion where some members have shared your exact words about their confusion with diets. Have you consulted with a nutritionist for guidance? Your nephrologist should be able to schedule you with one.

In Diet for diabetes and stage 4 CKD – very confusing – some others have shared similar concern, You might give it a look.
https://connect.mayoclinic.org/discussion/diet-for-diabetes-and-stage-4-ckd-very-confusing/
Rosemary

Thank you so much! You helped me more than you would ever know!!

I did not like this question…guess IAM still in a little of..please not yet.I haven't looked that far…it sickens me just the thought of it…to me it means …well IAM trying to keep postive attitude is everything!!..don't know if I would do dailalis..not sure at this point.

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