← Return to Chronic Kidney Disease (CKD): How do I stop progression?

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@marvinjsturing

I have had stage 5 CKD for 3 years now. Mine is the result of atypical hemolytic uremic syndrome. The aHUS was a reaction to the chemo I received for pancreatic cancer. Once the aHUS was cured, I have not had any further deterioration of my kidneys. I am not yet on dialysis, but my nephrologist keeps telling me I may need to start at any time. I was at Mayo in June. Still cancer free after 3 1/2 years. Started talking about a kidney transplant. I can start the testing process, but I can't have a transplant until I am cancer free for five years.

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Replies to "I have had stage 5 CKD for 3 years now. Mine is the result of atypical..."

Glad your aHUS was cured. My wife's aHUS was triggered by her kidney transplant 4 years ago. She started on Soliris every 2 weeks for the first several years post op but then changed to Ultomiris every 8 weeks. Unfortunately, her aHUS will not be cured and she will need her infusions every 8 weeks but that beats getting them every 2 weeks. We can plan longer vacations now.