Learn how to use Mayo Clinic Connect
Request an Appointment
← Return to Primary lateral sclerosis (PLS) treatment
Primary lateral sclerosis (PLS) treatment
Welcome to Connect, @johnny17
I'm connecting you @lorenamaher, who is living with primary lateral sclerosis (PLS).
Are you familiar with NORD (National Organization for Rare Diseases)? Here is their information page on PLS. At the bottom of the page are current investigational therapies https://rarediseases.org/rare-diseases/primary-lateral-sclerosis/
Additionally, I found these studies at
– Mayo Clinic https://www.mayo.edu/research/clinical-trials/search-results?keyword=Primary%20lateral%20sclerosis
– NIH https://www.ninds.nih.gov/Disorders/All-Disorders/Primary-Lateral-Sclerosis-Information-Page#disorders-r2
May I ask how old your brother is? Do you live near him?
Jump to this post
65 he is in assisted living . Morningside center richmond va . 2 miles from me ..
Thank you for responding !
Create an account to connect with other patients and caregivers like you.Ask questions, get answers, and give and get support.Also follow blogs from Mayo Clinic experts.
Already have an account? Sign In