← Return to Primary lateral sclerosis (PLS) treatment

Discussion
johnny17 (@johnny17)

Primary lateral sclerosis (PLS) treatment

Brain & Nervous System | Last Active: Sep 17, 2018 | Replies (6)

Comment receiving replies
@colleenyoung

Welcome to Connect, @johnny17
I'm connecting you @lorenamaher, who is living with primary lateral sclerosis (PLS).

Are you familiar with NORD (National Organization for Rare Diseases)? Here is their information page on PLS. At the bottom of the page are current investigational therapies https://rarediseases.org/rare-diseases/primary-lateral-sclerosis/

Additionally, I found these studies at
– Mayo Clinic https://www.mayo.edu/research/clinical-trials/search-results?keyword=Primary%20lateral%20sclerosis
– NIH https://www.ninds.nih.gov/Disorders/All-Disorders/Primary-Lateral-Sclerosis-Information-Page#disorders-r2

May I ask how old your brother is? Do you live near him?

Jump to this post


Replies to "Welcome to Connect, @johnny17 I'm connecting you @lorenamaher, who is living with primary lateral sclerosis (PLS)...."

65 he is in assisted living . Morningside center richmond va . 2 miles from me ..

Thank you for responding !