← Return to Second surgery for my 28 year old son. Advice needed please.
DiscussionSecond surgery for my 28 year old son. Advice needed please.
Epilepsy & Seizures | Last Active: Aug 12, 2018 | Replies (17)Comment receiving replies
Replies to "Hello Sarah, How are you and David getting along? Is David still putting surgery on the..."
Good morning Jake, David is doing really well since he and I started to talk with honesty about everything with our family and with each other. Best of all, he has actually gone four whole weeks without a seizure; his longest break in over a year. Because of this, he's much more focused, without the 'hangover' fog that follows frequent seizures. He has decided to defer his decision on surgery until he feels ready; currently we're both in agreement that surgery is a very bad idea indeed for David. I'm angry that the surgeon ever presented this surgery to David as if it was a viable option. I had a good talk with David's consultant, who agreed and is keen to explore other options. VNS is not possible for David. David seems to be truly embracing life, rather than putting things off because of the impending dread of surgery. He's taken on another voluntary job and seems very much happier in himself. Doctors, Surgeons included, are not Gods, just fellow humans; we shouldn't be afraid to question their decisions. I told David that any timescales are his alone; not mine, not the NHS deadlines or targets, just his alone. Thankyou for your support.