← Return to Arachnoiditis: Looking to talk with others
DiscussionArachnoiditis: Looking to talk with others
Spine Health | Last Active: Aug 16 4:15pm | Replies (388)Comment receiving replies
Replies to "Has anyone been treating Arachnoiditis with a pain pump?Also, comments needed for how helpful is pain..."
@donfeld You are looking to connect with members that are treating arachnoiditis with a pain pump. I added your question to the Brain & Nervous System group, along with the Chronic Pain group. I did this so you could connect with members in both groups like @leigho55 @feckert52 @jelizabeth @wisco50 @rsj @wsh66 that have previously discussed this topic.
Below I have also linked two previous discussions that may be of interest to you. I encourage you to scroll through the posts.
- Pain pump, I have one, how about one for you? ://connect.mayoclinic.org/discussion/pain-pump-i-have-one-how-about-one-for-you/
- arachnoiditis https://connect.mayoclinic.org/discussion/arachnoiditis-2/
May I ask how long you have been diagnosed with arachnoiditis?
I have had a pump for over twenty years and yes it does work you just need a team to help you, There a lot that goes into having one to start you need a test to see if it would help you after that then you need a surgeon to inpatient it then a doctor to manage it to make adjustment but I will say what was told to me don’t have them turn it up to where you have no pain because you will have them keep turning it up, it change my life when I got my pump I would say that I would do all again this is photo of my pump scar that all I except the one on my back but I couldn’t get a photo of that good luck on your journey
It seems to me that the effectiveness of a pain pump is very complex...from the medicines used to the dosing and for what reason for the pain. My husband had one implanted there at Mayo for cancer pain, but it was a complete failure. Even the procedure to put it in left him in poor condition. It is a decision that I regret terribly. That said, some folks swear by them. I am not sure why our experience was so poor. The Mayo pain clinic is pretty awesome, but for my husband's needs, they were not able to help.