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Arachnoiditis: Looking to talk with others
Spine Health | Last Active: Aug 16 4:15pm | Replies (388)Comment receiving replies
In my case it was the Mayo that gave this disease when a herniated disc repair went bad as then punctured the arachnoid membrain and cause a major spine leak. I had a bulge the size of a grapefruit at the base of from the leak and took three operations to fix. Now I have Arachnoiditis which they saying I need a stimulator only because I asked for a MRI of my lumbar area with contrast to discover this terrible incurable disease. No help from any doctors there and all they said it won't nessesary get worst. I wrong they are will my increase in pain the rest my life. If gets where I am bed ridden I got my pills ready for good by sleep.
Replies to "In my case it was the Mayo that gave this disease when a herniated disc repair..."
Hi, I too have arachnoiditis. Had since the early 80's and though no one could see the problem I had been suffering with this very rare disease. I found a doctor on HHI and he has sone wonders. Please, please do not let anyone give you shots in your back. Although there is !NO CURE for this very painful disease, a pain management doctor shoukd be willing to help with your pain. Good luck, and please keep posting!
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@donfeld
Are you saying you have some pills in reserve for taking your life? Sorry if I am misunderstanding, just want to clarify.
Donald, do you have adequate care? Do you have someone who helps you and acts as your caregiver? Just trying to get a handle on your current situation. It's obvious you have a condition that does not allow you to do everything for yourself, correct? Are you at home or are you in a nursing home, just wondering, if you don't mind talking about it. Thanks, Hank