@dkhouri
The more I read about this, the more I am in the deepest sympathy for your situation. I have to believe you have already read all the online articles. I can't imagine anyone with this rare condition not reading everything they can get their hands on. But for the sake of discussion, I will mention two.

It looks like spinal cord stimulators have helped this condition, as per this article:
https://consultqd.clevelandclinic.org/rare-pain-condition-still-exists-in-new-forms-with-new-hope-for-relief/
You mention not wanting to have one without first finding the right doctor to put it in. I agree 100% but I think there should be a god number of those doctors around, a lot of these are being done these days, no? Also, try to understand the percentage of people with your illness who have had an SCS got significant benefits from one.

Another article here: https://www.marijuanadoctors.com/conditions/arachnoiditis/ This article states:
"medical marijuana can provide patients with immediate pain relief for their muscle spasms. Cannabis Indica strains can work to alleviate pain, aid in sleep and relax muscles. Cannabidiol has proven to demonstrate remarkable progress in relieving inflammation and easing the tingling and numbing sensations associated with Arachnoiditis."
I asked previously, have you or would you consider med. marijuana? At least as a stopgap pain reliever?

I do hope you find the doctor for you. I would strenuously try to get the attention of places like Mayo, Clevelands Clinic, etc. Or at the very least a teaching hospital. Again, I am saddened you have this, at any age, but 31 is way too young to have this burden placed upon you. You do at least need immediately to be provided a way to manage the pain enough so that you are not in unrelenting excruciating pain. You mention having seen a number of pain doctors already. What have you been offered for your pain and has anything been effective as yet?

Best, Hank