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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 4 hours ago | Replies (405)

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@dkhouri

please may I ask who your doctor is. I need help so badly. i will not risk a stimulator surgery with arachnoiditis. I worry that I will find a doctor after a year who understands me but the answer is "we cant help you at all". I'm very worried my condition is progressive very much so. Its been only a year of progression I am 31, I have no idea how I will make it "lifetime" as this is horrible.

If you would be willing to share your doctors name, I'd greatly appreciate the help. I will travel jsut about anywhere. I will get a medical flight I will sell my home. I'm in dire need of assistance.

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Replies to "please may I ask who your doctor is. I need help so badly. i will not..."

Contact Dr. Forest Tennant in California who has been treating patients with this condition and will send you the latest treatment. foresttennantmd@gmail.com
My doctor is here in Lakeland Florida. He understands it but it is really for some one who lives here. He is the pain doc I have ever met and knows the pain of our condition.

You are only 31? DAMN!! Help will come; just please don't give up. I mentioned that the Cleveland Clinic might be helpful. I got that info online.