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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Apr 16 10:18am | Replies (386)

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@donfeld

Hank, thank you for sending this as my pain doctor has mentioned this as I finally found pain doc that understand Arachnoititis. I think my disease is progressing but it very difficult to know for sure because after 8 surgeries along with a operation that went bad for herniated disc. It took 3 operations to fix and therefore I have a lot of scare tissues and some doctors at Mayo do not recomend stimulator or any surgery. I get very skittish about implants of anything in my body especially from people with stimulator.
The worse part of all this pain is that I am a good golfer and live on one which causes real bad feelings about future along with losing contact with fellow golfers and the camaraderie.
Thanks again for your thoughts and help and I WELL revisit.

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Replies to "Hank, thank you for sending this as my pain doctor has mentioned this as I finally..."

please may I ask who your doctor is. I need help so badly. i will not risk a stimulator surgery with arachnoiditis. I worry that I will find a doctor after a year who understands me but the answer is "we cant help you at all". I'm very worried my condition is progressive very much so. Its been only a year of progression I am 31, I have no idea how I will make it "lifetime" as this is horrible.

If you would be willing to share your doctors name, I'd greatly appreciate the help. I will travel jsut about anywhere. I will get a medical flight I will sell my home. I'm in dire need of assistance.