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Arachnoiditis: Looking to talk with others
Spine Health | Last Active: 16 hours ago | Replies (414)Comment receiving replies
@donfeld What is wrong with your spine.? Have you been to Mayo. Your doctor can refer you or you can call to get an appointment. I had a fusion on my back on June 9th from T-10 to my pelvis. It was a 9 hour surgery. My doctor was surprised I could put up with the pain. At L-4 & 5 I had very pinched nerves, which he corrected. There was degeneration which he fused and put a rod on both sides of my spine.
So I should live forever with this spine, although I'm 68. It's a hard surgery, but know the outcome will be positive. They tested me before the surgery and ran a lot of tests and told me the surgery would help a lot. I have to wear a brace very tight and not move to the side, back or forward much. I have a wonderful husband being my nurse. Hope you get better.
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Hello. I got a text from Mayo clinic about someone looking ro find out about arachnoiditis.
I was diagnosed with this horrible disease in 2012. Quite by accident. I have had back problems since the 80's. Back then no one knew exactly what to do to fix it. Found a wonderful doctor and had my L4-L-5 fused. Went ok for a few years. But the pain returned. Had SO many shots in my back. Doctors said there wasn't anything they could do. After finding a pain managment doctor and getting more epidurals had another MRI. THATS when they discovered it. So, since 2012 i have been on the Fentanyl patch every other day. Plus hydrocodone. My doctor also provided me with medical marijuana. I am still suffering. And tbere is NO CURE for arachnoiditis. Hope this may help some one. Peace be with you.