Hello @dubis -- I would like to add my welcome to Connect along with the other members here. There are several discussions on Connect where you can meet other members discussing Arachnoiditis and learn what they have shared.

Any Adhesive Arachnoiditis members here?
-- https://connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here/

Arachnoiditis: Trying to find a specialist
-- https://connect.mayoclinic.org/discussion/i-am-looking-for-a-doctor-in-nc-that-treats-patients-arachnoiditis/

Arachnoiditis -- https://connect.mayoclinic.org/discussion/arachnoiditis-2/

@dubis may I ask what is the symptom that is most difficult for you?