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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Apr 16 10:18am | Replies (386)

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@dubis

I am so sorry. I was diagnosed today with Arachnoiditis. I’ve been a Duke patient for the last four years- two fusion surgeries, and two ocular decompression in the past 3 yrs. Many injections for pain as I refused opioids. Now this. I’m not sure where to go from here.

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Replies to "I am so sorry. I was diagnosed today with Arachnoiditis. I’ve been a Duke patient for..."

Just keep movement! Go Google Dr. Forrest Tennant

Hello @dubis -- I would like to add my welcome to Connect along with the other members here. There are several discussions on Connect where you can meet other members discussing Arachnoiditis and learn what they have shared.

Any Adhesive Arachnoiditis members here?
-- https://connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here/

Arachnoiditis: Trying to find a specialist
-- https://connect.mayoclinic.org/discussion/i-am-looking-for-a-doctor-in-nc-that-treats-patients-arachnoiditis/

Arachnoiditis -- https://connect.mayoclinic.org/discussion/arachnoiditis-2/

@dubis may I ask what is the symptom that is most difficult for you?