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Arachnoiditis: Looking to talk with others
Spine Health | Last Active: Aug 16 4:15pm | Replies (388)Comment receiving replies
Hi rachelarachgirl. I'm terribly sorry for what you are going through. I was diagnosed in 2012. Not something I would want anyone to experience. I too, have way too many shots in my back, trying to relieve my pain. Of course, the shots ever proved to help me. It's very difficult to explain just what the pain is like, so here we go with the pills. We, that have A A, have no recourse. I could have a pump installed to shock the nerve into submission. Not going to happen in my case. If you should feel the need to talk, please do t hesitate to contact me!
Replies to "Hi rachelarachgirl. I'm terribly sorry for what you are going through. I was diagnosed in 2012...."
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What pump shocks the nerve? Do you mean a spinal cord stimulator? I am not a success story, but many people get great relief from them. The pump is an alternative to oral meds and delivers an opiate (usually morphine or dilaudid) directly to the spinal cord. I am waiting to hear from Mayo - they got my records a week ago today. If they won't see me, I have an appointment with a neurosurgeon at Emory in January as a backup (I live about 150 miles from Atlanta). The local neurosurgeon who did my SCS implant wants me to try another one but I am very hesitant to do that. Are you in N Carolina or S? I am in Greenville SC