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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Aug 16 4:15pm | Replies (388)

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@kimspr3

Hi don, I know how you feel, same thing has been going on for along time. AA so complexed it seems they can't be bothered. I bought Tennant's book $ 20.00. It's informative but shy's away from putting the blame on doctors. He's very passionate for AA Patients. He has a interesting background.

Today I saw my Pain Management dr. he added more Hydromorphone in my pump and the time I can use the a remote that gives me an extra does if needed. I mentioned how much my hands to elbows wake me, he told me it's coming nerves are coming from my neck! All I could say was "oh no!" I decided to contact a neurologist to see if the nerve damge could be stopped from spreading. I sent my history to a Neurologist and was so surprised when they told me the dr. read my information, to does not take cases like mine so I was referred group called, Aggressive Neurology. I was so happy that a dr. cared enough to contact me. I was like a little kid. Reason I'm telling you maybe you could look into it also and anyone who is reading this.

Don't remember if I told you I looked into the mat and looking forward to you opinion! Wishing you a good evening

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Replies to "Hi don, I know how you feel, same thing has been going on for along time...."

Go see Dr. Todd Rozen at Mayo in Jacksonville as he is the best neurologist in the country. It would be tough to get an appointment but it's worth it as he's been treating me with my neck and pain nerve issue and he gives a nerve block that works. I hope it works for you and the mat seems to be helping. Have a great evening and sleep tight.