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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 4 hours ago | Replies (404)
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@kimspr3

thank again don, you are so nice. The care you are receiving is care I NEVER had. Good idea for brain scan. You sure are getting a good work up. I've had MRI with and without. Only showed how wide the laminectomy was. I had a MRI, Johns Hopkins, now that was extensive looked for everything. Showed Tarlov Cyst and something else I can't spell, I'll call it, some kind of node. That dr. said I have scaring around the nerves roots and A.A. . I have the proof. Mentioned so many things including the physical exam. Trying to get appt. with a Neurologist, have to fax as much info. as I can for appt. I read that AA is similar to MS?
Shot in your neck, that must hurt! I hope AA. Has not spread, my intuition say, NO.

When is the mat coming? I hope soon. I'm here for you too! Good luck on the 14th! Wish I could see your dr.. What state is it?

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Replies to "thank again don, you are so nice. The care you are receiving is care I NEVER..."
Donald | @donfeld | Sep 30, 2019

I'm still waiting for the mat and anxious to see what it is and how it works. If you're interested in seeing a great neurologist at the Mayo Clinic in Jacksonville is dr. Rozen who has been my doctor for years and and I've been told that he's the best in the country. He has helped me the most with my AA as the other doctors didn't know what they were doing and he's not a back specialist but he had a great idea and sympathy as well as a coordinator for me at the Mayo Clinic and he's a great friend. He has treated me for years for radiation damage from a throat cancer as I go into spasms and I look like an epileptic fit for about 30 seconds. He himself has gained weight over the years and I've asked him what the problem is he's having pain problems himself and he's on steroids and so he's gaining weight as he has sympathy for all of us. Hard to get to see but if you get to see him I know that he will help you and I have a friend waiting to see him. Take care

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