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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Aug 16 4:15pm | Replies (388)
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@donfeld

My heart goes out to you again and I hope you get some relief. If they anybody does any MRIs they must do it with contrast in fact I'm heading up to the Mayo October 14th and getting injections for Botox in 1 shot in my base of my skull for my radiation pain and I'm getting MRI with contrast to see if AA is up there as well in my upper vertebrae. Waiting for my map to come but I talked to you about that pemf and let's keep our fingers crossed because maybe it will work. Hang tough and I'm there for you. Don

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kimspr3 | @kimspr3 | Sep 30, 2019

thank again don, you are so nice. The care you are receiving is care I NEVER had. Good idea for brain scan. You sure are getting a good work up. I've had MRI with and without. Only showed how wide the laminectomy was. I had a MRI, Johns Hopkins, now that was extensive looked for everything. Showed Tarlov Cyst and something else I can't spell, I'll call it, some kind of node. That dr. said I have scaring around the nerves roots and A.A. . I have the proof. Mentioned so many things including the physical exam. Trying to get appt. with a Neurologist, have to fax as much info. as I can for appt. I read that AA is similar to MS?
Shot in your neck, that must hurt! I hope AA. Has not spread, my intuition say, NO.

When is the mat coming? I hope soon. I'm here for you too! Good luck on the 14th! Wish I could see your dr.. What state is it?

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