I am so upset, Arachnoiditis, So many ask, Where do I go? I need help and so on? Can You Imagine patients with AA all over the world and it's still hidden. Dr. Tennant a wonderful Dr. but not as forthcoming as to as to The Who causes it. Dr. Burton, Dr. Sara Smith UK. I can't think of the others??? lack of interest [medical profession] read Burton Report, Read, Neurologists Talk Communities, As I said I now have Neurological pain from knees to feet. Boy does that hurt. Now another Pill. 9th of Sept. I had a Prolapse done. I should have listened to myself not to do it and live with the problem. It did't cause any pain, I could have excepted it. I was thinking about the position I would be in for the surgery, my spine does not curve anymore because of a spine surgeon, placement of my legs another issue. Well I was right. Aggravated my nerves , lumbar spine. Doing anything from the waist down now, showers, hurts a lot. I have a high pain threshold but this is keeping me in bed more, thats not me!!!! So frustrating to read here about AA and I feel so bad for all of you. If I see a Neurologist I'm not going to share my Diag. they won't see me. Just my experience.

Don,You will become a Pioneer