I think you will find getting proper treatment for this disease IS like banging your head against the wall. I do my own research and get my doctors to order what I need. That doesn't mean I always feel better but it helps. Medical marajuana, specifically cannibis oil with equal parts THC and CBD, has been a huge help when opioids have failed to make a big enough impact. I know what this disease can do to someone's life. I live it. But looking outside of the box is going to get you farther than any doctor will!