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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Aug 16 4:15pm | Replies (388)

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@joanmahon

What part of Mayo did it go to and which of Clinics (name?). When I have appt at Spine Center in JAX will see how they handle it. Chief in Neurology knows I will be asking for suggestions when I come in to Spine Center. Thank you.

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Replies to "What part of Mayo did it go to and which of Clinics (name?). When I have..."

Joan, I haven't heard anything yet although I did check to see what was going on with me and these doctors and they said they are doing some conferences and discussions between the doctors to see what how they're going to treat me in what kind of come back they're going to do Derek. One of the doctors weren't even knowledge it and would not give me a decent answer and I'm really upsetting. I will keep you informed if I hear anything but I would think they would least look at it to see if there's anything there that's that's positive or something they can use or help us because we know that the handbook does help and at least it gives us some direction rather than nothing. No stimulator implant for me and which two doctors told me at the Mayo don't do it. Kind regards, Don