Thanks John, I will be glad to get into it and see if I can follow it as it's hard not to eat pasta or bread which is my favorite. Any suggestions I would appreciate it. Do you get any help from the Mayo Clinic from any particular doctor or is anybody coordinating York are there because that is my main problem as I'm dealing with now. There's no preventive care program and I sent stuff on Tennant and they kind of discounted it or never heard of him. I don't understand this why there's no understanding of our condition at the Mayo Clinic hey, and to come up with some kind of aggressive preventive care. Thinking of moving to Jacksonville to get the proper primary doctor in care that I would need ongoing. What do you think?

Yay John. You did most of my work for me. There are a couple of other links too. If you google his name they come up.

Don, As far as I knew he decided to retire (is in his late 70’s) fed up with DEA interference. Yes. He prescribed opiods AS APPROPRIATELY as he saw fit but his websites show other forms of pain relief. The pain can become excruciating every time nerves are pulled or you do heavy exercise or get overtired. I THINK golf not recommendable. (Sorry!).

I was diagnosed in 2010 after at least 20 years of difficulties, and my goal was prevention also like Don.

As for insurance, Don, see if doc can code as Meningitis because thats what iARC and AA are, in principle. Have never had a problem even with Medicare. The arachnoid is one of the meninges. First stages are ARC (arachnoiditis) and once the nerves get stuck “like cooked spaguetti” in the spinal cord that’s when it becomes Adhesive Arachnoiditis. Make sure you get a GOOD MRI with contrast for diagnosis.

Am finishing Pain Rehabilitation Program on Friday and must confess to being pleased. The keys are MODERATION in all and NOT TO TALK ABOUT IT. Their “tools” explain it all. Brain must be retrained.

Hurts me to hear of so many who are suffering with this horrible condition—listed in the National Organization of Rare Disorders. (NORD). Dr Tennant’s article is there now. But when I get home next week will have to withdraw to give PRC a good chance to work. Thinking or talking about pain are considered Pain Behaviors. To be prevented at all costs.

Dont give up, Don. Read all there is to know about ARC and AA. THERE are even some good videos out there. The Burton Report is important also. The links from John also good but I would go directly to Dr Tennant’s websites. Practical Pain Management and Pain Network have some of his articles compiled by third party. His own are under his name. His most recent Caregiver Handbook is from this year. Highly recommendable to print and study carefully. Good luck!