Hi! So much to respond to but am not in a GOOD position right now. Am attending an excellent 3 week program on Pain Rehabilitation at Mayo Clinic Jacksonville and just finished week 1. Was so sad that you were left with bad impression about Dr Tennant. Wish I could explain. But he is no longer doing patient care only Education. Please go to his websites for more help. He is a wonderfully kind doc but is now in semi retirement since closing the Clinic in Nov 2017. DEA FORced it upon him totally unfairly. He is in his late 70’s and preferred to retire before dealing any more with crazy DEA. Have been an ARC patient for at least 15 years and finally diagnosed in 2012. So I totally understand how everyone gets the run-around with this disease listed in NORD (National Organization for Rare Disorders). This might be a good resource for you. Look please for Dr Tennant’s websites on Hope and others. There is an excellent manual for Caregivers of ARC patients. Print and refer to it daily! Big hug to all with much understanding. J