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Arachnoiditis: Looking to talk with others
Spine Health | Last Active: Aug 16 4:15pm | Replies (388)Comment receiving replies
My Pain Management dr. said the same thing but not so kind. We have get our heads together to bring this to the attention of our Senators, Congressmen, News papers ETC. I don't want to die this way with no accomplishments so others don't have to go through the same. Legislate or try to a bill the those surgeons must!!!!!!!!!!!!!!!!!!!!!!! inform post-op patients of the dangers they may cause others. This has become a epidemic and NONE of Medical Community wants to acknowledge it. Law suits!! No one wants to help me not even Neurologists. As soon as I tell them my diag. they say they are not familiar with it. LIES of course they heard of it.
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Hi! So much to respond to but am not in a GOOD position right now. Am attending an excellent 3 week program on Pain Rehabilitation at Mayo Clinic Jacksonville and just finished week 1. Was so sad that you were left with bad impression about Dr Tennant. Wish I could explain. But he is no longer doing patient care only Education. Please go to his websites for more help. He is a wonderfully kind doc but is now in semi retirement since closing the Clinic in Nov 2017. DEA FORced it upon him totally unfairly. He is in his late 70’s and preferred to retire before dealing any more with crazy DEA. Have been an ARC patient for at least 15 years and finally diagnosed in 2012. So I totally understand how everyone gets the run-around with this disease listed in NORD (National Organization for Rare Disorders). This might be a good resource for you. Look please for Dr Tennant’s websites on Hope and others. There is an excellent manual for Caregivers of ARC patients. Print and refer to it daily! Big hug to all with much understanding. J