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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 1 hour ago | Replies (404)

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@kimspr3

I have Adhesive Arachnoiditis, Sadly you may be right. Please do not have anymore procedures. Surgeries, Epidurals, nerve blocks caused mine. It may be difficult to find a Dr. who is familiar with this. If you can research Arachnoiditis Foundation Doctor Forrest Tennent, Dr. Burton retired from Jones Hopkins, NORD, National Organization Rare Diseases. DR. Sarah Smith from UK. May I suggest you to learn as much as you can about Arachnoiditis. My situation became worse as I was never told anything about the disease and I trusted the Doctors. I learned 16 yrs later. Sometimes the words they use is "Failed Laminectomies". "Failed Back Surgery" This can be found in many of the Arachnoiditis Literature.

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Replies to "I have Adhesive Arachnoiditis, Sadly you may be right. Please do not have anymore procedures. Surgeries,..."

So with you! Sometimes you just have to stop. My failed neck surgery caused my greatest disaster. I’m now just trying to keep as comfortable as I can. My doctor is truthful with me said she will order any type of test I want but the outcome will not change. 😨