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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 1 hour ago | Replies (404)

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@joanmahon

Yes, thank you so much. I have for years followed Practical Pain Management, and I am indeed a long-distance patient of Dr. Tennant´s, who responds by email whenever I have concerns. I think he took me on when he realized the ARC diagnosis came from Dr. Antonio Aldrete, whom he knew well, and saw the many locations of ARC in and around my nerves. At the time it was next to impossible to get an appointment. I met Dr. Tennant in 2017 and was an amazing doctor. Days afterwards he closed his clinic, but told me he would still be available over internet from his Foundation.

Thank you so much for your additional reminders. This is precisely what causes me a sense of anxiety. I have a response from Dr. Tennant about it, that I will add to my consultation at Mayo next week, when this will be the first theme of my consultation. Have been assigned an excellent doctor there.

Over the years I have printed everything I ever could about ARC, including Burton Report and information from the doctor in the UK who was a first guide in this process. Thank you so much Kim. You are Spot On...necessary to research everything about one´s case. We are our best advocates. Sometimes our ONLY Advocates! Joan

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Replies to "Yes, thank you so much. I have for years followed Practical Pain Management, and I am..."

hi Joan happy to hear from you. We must be our own Advocate, no one else will. Please let me know how your Consultation goes if you can. I have a different kind of pain now. I can not take too much more of this. My Pain Management dr. is a excellent dr. but I am his first patient with AA. I spent the day seeing if Neurology would help? Dr. Tennant, I faxed him results of my recent MRI and a few other things. the reply I received was a shock and a disappointment. his reply, if it was from him? There are times I don't think he is the one responding?? Well, the reply was informing me that he wrote a book on AA and I hope you feel better. wishing you good luck!!!!!!!!!!!!!!!!!!!!! All I want in my life is to be comfortable, dress myself and leave the house not just to see doctor's.

Joan,
Was your consult at Mayo Clinic of any help? Who did you see? I am looking for someplace that has any knowledge of arachnoiditis as I have just lost the ability to walk.
Thanks
Johanna
Johgar@sbcglobal.net