Hello @joanmahon, Thank you for sharing and asking questions here on Connect. I agree with @artscaping that sharing your experience and asking questions in an open discussion vs a private message is much better for you and for the members. Not only do other members learn from your experience, hopefully something they share will help you. I did run across a recent inspiring story for coming to Mayo Clinic for Normal Pressure Hydrocephalus that might help you.

Puzzling Symptoms Explained by Hydrocephalus Diagnosis
-- https://sharing.mayoclinic.org/2019/02/15/puzzling-symptoms-explained-by-hydrocephalus-diagnosis/

Here are 2 other discussions on Connect for NPH that you might want to join and meet other members discussing this condition.

> Groups > Brain & Nervous System > Normal pressure hydrocephalus (NPH) and dealing with work
-- https://connect.mayoclinic.org/discussion/nph-and-dealing-with-work/

This discussion is older but may provide some helpful information:
> Groups > Brain & Nervous System > NPH (normal pressure hydrocephalus)
-- https://connect.mayoclinic.org/discussion/nph/