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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 2 hours ago | Replies (404)

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@artscaping

@joanmahon, Good evening. What a wonderful response. Please don't go"private". You have a wealth of information and others would benefit from your life experiences as well as your knowledge of the factors affecting your health.

Have you talked with anyone at Mayo about your spinal tap concern? Perhaps someone in that medical team could give you more details and relieve some of your apprehension. Knowledge is quite powerful. I am going to call on my colleague @johnbishop to see if he can find a discussion about the procedure and add to your information. John, we need a little help here! Sleep well....and peacefully. Chris

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Replies to "@joanmahon, Good evening. What a wonderful response. Please don't go"private". You have a wealth of information..."

Hi Chris, after a full day I finally realized I didn´t get to reply to your kind note about the spinal tap....I managed to reply to John but not to you, so my apologies please!

I have to admit I had been giving a lot of thought to whether I could be contacting Mayo about this particular aspect of my August "evaluation appointment" and, until you mentioned it, I wasn´t sure it was even possible to do this. What I did do (when attempting to make an appointment online) was I brought both subjects into the topics I was hoping to address (spinal tap to determine if NPH is a correct diagnosis, and the counter-indication of a spinal tap when have already been diagnosed with Arachnoiditis years ago). Am planning to see tomorrow if there is somewhere in the Patient Portal that I could send a message explaining this particular concern. I am sure the docs are full of messages from their current patients...don´t want to be too annoying. But thank you so much for quickly capturing that piece of anxiety. Life has gotten so full of anxiety since the symptoms started adding up....so thank you again for writing and taking so much worry off, with your suggestion. Nighty-nite to you both!