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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Aug 16 4:15pm | Replies (388)
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@JustinMcClanahan

Hello @rachelarachgirl, welcome to Connect. You have found a great place to meet others going through similar situations as you are currently facing. While we wait for the other members already in this discussion, I would like to also invite @thelmalouise76, @ledgerwp, @jlfisher56, @lconroy, @annmaria, and @galady to this discussion to share their experiences with you on living with arachnoiditis.

@rachelarachgirl, if you are comfortable sharing more, you mentioned that your physician at Mayo Clinic helped with your diagnosis and recognized your pain, was there any recommendation on controlling your pain or what you can do moving forward?

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Replies to "Hello @rachelarachgirl, welcome to Connect. You have found a great place to meet others going through..."
Donald | @donfeld | Sep 24, 2019

Has anybody out there tried pemf treatment? If so let me know because it sounds like something that might work cuz I have a neighbor that swears by it and has changed his life with pain and sleep. It increases the blood flow which is what helps the nerves and your pain as well as sleep. Before I purchase it I just want to see if anybody out there has any results or tried it. Thanks, Don

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missb | @missb | Oct 18, 2019

My neurosurgeon said the most plausible explanation for my symptoms is arachnoiditis or some other neurological disease. I have had too many invasive spinal procedures to count with complications and four spine surgeries. I currently have a pain pump that is not providing relief. How do I find a specialist who can diagnose my condition? I have thought I had AA for years since the symptoms explain everything that I experience. I have recent imaging that I could send to a doctor. I am desperate and in terrible pain.

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Donald | @donfeld | Feb 12, 2020

Has anybody tried the stimulator as I have increasing systoms of Arachnoititis that is getting out of control. I'm experiencing extreme pain in bed every 3 hours it wakes me up and I have to go out and walk around and lot of times it feels like I need a bowel movement. Is anybody experiencing that?

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