Hello, Dr. Tennant, NORD has helped. When I email him, ask questions he or staff always responds. I have not met 1 Dr. who claims they know about A.A. or they don't want to know because they caused it.

I have a pain pump, happy with it. BUT, I have been taking Hydromorphone since about 2015. My body has become immured to the pills and liquid. I told my P.M./Anesthesiologist he doesn't seem to hear me. I asked for a different kind. I am his 1st A.A. patient. I asked him if he gave up on me, he was insulted. Not getting positive feeling from him?????? Pain is taking a terrible toll on me, husband also. I'm having pelvic reconstruction surgery which is very needed but I am terrified of the pain I will have from that and the pain I have everyday??? Has anyone experienced hair loss, urine, bowel retention? After extensive reading those could be one of the side effects? Dr. Tennant and other Researchers in AA have also agreed that a certain hormones do help with pain, I can't find a dr. to read the information he sent me.

I just been diagnosed with a a and I've been reading about dr. Tennant. I was not aware that he lost his license could you tell me more about that if you can and are you following some of his treatments. Have you tried the stimulator which is what the Mayo is suggesting right away as I am not in stage 3 I'm going to Stage 1. According to Tennant he says don't do stimulator until later as stage 3 if if that should occur which I'm trying to prevent. Getting a Little Help from the Mayo Clinic and I don't understand why there's more research or why this more ideas of what to do for preventive care to prevent those nerves to congeal? Is AAA covered under insurance as I'm getting the impression that there's a problem with providers at the Mayo with my condition? Does anybody out there know if I can play golf with this condition and will it get worse because of golf?

I am so angry with the restrictions that the DEA has placed on our therapy! My therapist says that it's like when one bad apple runs the whole bunch.
I don't know where you live but I have had good success with medical marajuana. Equal parts CBD and thc in a concentrated oil has made my life more bearable.

I’m wondering why you are detoxing from your pump I have one and I’m always worried about having it in too long

Dr Tenant still works hard to educate the world about adhesive arachnoiditis. He is a wonderful, caring doctor. He is still educating the world through ArachnoiditisHope.com

I have severe adhesive arachnoiditis. Am fused from C3 thru my sacrum ( post MRSA meningitis) retired RN, was doing ok, bur now severe intractable pain. I am on Medicare & Medicaid (secondary) Have looked for a treating physician, for years....no luck. Severe shortage of specialists, especially neurology. Most won't treat it, won't read Dr Tennant's information Been on lot's steroids with flare ups. Since DEA controls what can be prescribes, i'm considering pain pump (i am desperate) I spend 20 hours a day, laying on special mattress that i get thru insurance co. I cannot do 95 % of What DR Tennant recommends. i am now quite depressed, as I've had to give up most of my life. I do work out with 5 lb weights & can do squats, to strengthen my quads & glutes. I have a tethered cord at C6 & lumbo sacral... area, so no balance, no coordination. With all the hardware in me, so limited. I also have NO money, anymore to buy supplements etc... I do not know what else to do? I also have a permanent supra pubic catheter (post paralysis) & get multi drug resistant infections needing IV therapy for UTI Don't mean to be a downer, but think the pain pump might be only option

May i inquire why U are detoxing from your pump? I have an evaluation on the 9th, to see if i would be a candidate for the pump. As a retired RN, i know DEA prevents us from getting any decent pain meds. Not sure there's any alternative for me Know Dr Tennant has closed his practice. Do u know if it's still possible to contact him?? I am desperate laurenseavertson@q.com

@mdmo Lauren Seavertson. I've had Arachnoiditis for about 25 years. I now live in a suburb of Phoenix, in the cheapest retirement home in the valley. I was taking Dr Tennant's papers to my doctor's. Not one was really interested. I'm former RN & can't believe the ignorance, or attitudes of most doctor's They say the health care system is broken & of course getting worse with our new administration. My current pain clinic is a joke. I went there because every one says a pump is only answer, I had a trial of pump with Dilaudid but 95% of my pain is in my butt & down legs, with very severe, bilateral sciatica & horrible pain down both legs & bilateral pain both feet, top & bottom, & in every toe now. This all simultaneous. Sorry, but think iv'e lost about 20 IQ points. Had a substitute pain doc, since mine on vacation. She's familiar with Arachnoiditis & gave me Dilaudid ( allergic to Morphine) I didn't even have to ask. I get 2mg pills, one every 4 hours. it's better than OXY, but it really doesn't help that much... I'm fused C3 thru sacrum & all my whining is somewhere on this site. No doc's in this valley want to treat me, as a PCP. The minute i talk about managing my steroids, when i get a flare, they say they don't do that. Takes 6 plus months to get a neuro appointment & most neuros i've contacted tell me it doesn't interest them, because it's not interesting & u only need steroids. They all sub specialize. I have what looks like a small pharmacy in my little kitchen. I also get valium for, when i get my horrible, awful pain. Nothing much helps & I'm afraid the feds will come in & cut my meds, because they are doing this in Phoenix. I used to go to the hospital & beg to be hooked up to stronger meds ( used to get Dilaudud or Fentanyl & some benzos) but i'm afraid, as the damn Opioid crisis ruined it for everyone one of us with legitimate, severe pain. Since I'm fused everywhere, my pain is from top of my neck down both legs, feet, all toes. I can only lay flat & typing on the computer, is absolutely impossible. Had trial of pump with Dilaudid but not sure if it helps, cause no real back pain, it's all horrendous nerve pain in lower extremities. & in my neck & upper back, from all my hardware. I was totally paralyzed with MRSA in my spinal cord. I recovered from that some what, because i was in Northern US & got fantastic care. Now have permanent suprapubic catheter, with drug resistant. & infections & get horrendous flares & no one will manage my steroids or wants to mess with me & they tell me just take steroids, not difficult etc Can't sleep, can't use my arms much... I'm depressed & have a PHD with remote therapy. She's great, but I'm so isolated as i can't go downstairs & go to senior fitness or go to the dining room etc... I try, but i also have a torn rotator cuff & need a new shoulder... feel like i have wasted last 25 yrs, & I'm thinking that I'm going to die soon. I'm on Medicare & Medicaid, so out of most money ( of course, this get's in the way of a lot of good doctors etc) Need help, but some god docs just say they feel sorry for me. Any suggestions? Would love to talk to other's with this horrible condition. Hate Arachnoiditis & i'm sorry for typos, but feel like i am going to pass out!!! Sorry i am whining again

@mdmo I am on Dilaudid 2 mg every 4 hours, plus valium for Adhesive Arachnoiditis. I have been on here before & guess u can see my entire whining situation. This doesn't help my pain too much ( but I've gone thru hell, just to get this. I have taken Dr Tennant's papers to doctors, none of them are interested. Am a retired RN, spine fused thru C3 thru sacrum. Pain clinics are a joke, have been to several. The one i have now seems to be a pill mill for really messed up people, like myself. I literally get 3 minutes with my pain Nurse. So do all the the others, as we have talked about limited help, outside after appointments. Arachnoiditis has ruined the last 25 yrs, plus of my life. I can't sit up or type, due to extreme pain in my neck & shoulders. Most of my pain is in my legs, feet toes. I have no lower back pain, probably due to my fusion.. Does pain pump help this type of pain? I had a trial with Dilaudid, but i get such extreme constipation, i didn't get the pump. besides my doctor doesn't want to put it in my neck... I have another stimulator in right side of spine (DRG), & hardware entire spine. So i am not exactly a great candidate. Plus my UTI's are drug resistant, due to suprapubic catheter. My name is lauren Seavertson. Sorry, can't sit up. Need to go to the hospital tomorrow AM, another UTI... i am really scared, as my kidneys aren't great & running out of antibiotics to take. Only good thing, is that i live in AZ & on ATLCS AZ, long term care & i am now so poor, i don't have to pay anything, for my lousy care. Can't sit up now, please write, if interested