← Return to Arachnoiditis: Looking to talk with others
DiscussionArachnoiditis: Looking to talk with others
Spine Health | Last Active: 6 days ago | Replies (403)Comment receiving replies
Replies to "Pam, I too have Adhesive Arachnoditis from way too many steroid injections and other procedures that..."
I just been diagnosed with a a and I've been reading about dr. Tennant. I was not aware that he lost his license could you tell me more about that if you can and are you following some of his treatments. Have you tried the stimulator which is what the Mayo is suggesting right away as I am not in stage 3 I'm going to Stage 1. According to Tennant he says don't do stimulator until later as stage 3 if if that should occur which I'm trying to prevent. Getting a Little Help from the Mayo Clinic and I don't understand why there's more research or why this more ideas of what to do for preventive care to prevent those nerves to congeal? Is AAA covered under insurance as I'm getting the impression that there's a problem with providers at the Mayo with my condition? Does anybody out there know if I can play golf with this condition and will it get worse because of golf?
I am so angry with the restrictions that the DEA has placed on our therapy! My therapist says that it's like when one bad apple runs the whole bunch.
I don't know where you live but I have had good success with medical marajuana. Equal parts CBD and thc in a concentrated oil has made my life more bearable.
I’m wondering why you are detoxing from your pump I have one and I’m always worried about having it in too long
Dr Tenant still works hard to educate the world about adhesive arachnoiditis. He is a wonderful, caring doctor. He is still educating the world through ArachnoiditisHope.com
I have severe adhesive arachnoiditis. Am fused from C3 thru my sacrum ( post MRSA meningitis) retired RN, was doing ok, bur now severe intractable pain. I am on Medicare & Medicaid (secondary) Have looked for a treating physician, for years....no luck. Severe shortage of specialists, especially neurology. Most won't treat it, won't read Dr Tennant's information Been on lot's steroids with flare ups. Since DEA controls what can be prescribes, i'm considering pain pump (i am desperate) I spend 20 hours a day, laying on special mattress that i get thru insurance co. I cannot do 95 % of What DR Tennant recommends. i am now quite depressed, as I've had to give up most of my life. I do work out with 5 lb weights & can do squats, to strengthen my quads & glutes. I have a tethered cord at C6 & lumbo sacral... area, so no balance, no coordination. With all the hardware in me, so limited. I also have NO money, anymore to buy supplements etc... I do not know what else to do? I also have a permanent supra pubic catheter (post paralysis) & get multi drug resistant infections needing IV therapy for UTI Don't mean to be a downer, but think the pain pump might be only option
Hello, Dr. Tennant, NORD has helped. When I email him, ask questions he or staff always responds. I have not met 1 Dr. who claims they know about A.A. or they don't want to know because they caused it.
I have a pain pump, happy with it. BUT, I have been taking Hydromorphone since about 2015. My body has become immured to the pills and liquid. I told my P.M./Anesthesiologist he doesn't seem to hear me. I asked for a different kind. I am his 1st A.A. patient. I asked him if he gave up on me, he was insulted. Not getting positive feeling from him?????? Pain is taking a terrible toll on me, husband also. I'm having pelvic reconstruction surgery which is very needed but I am terrified of the pain I will have from that and the pain I have everyday??? Has anyone experienced hair loss, urine, bowel retention? After extensive reading those could be one of the side effects? Dr. Tennant and other Researchers in AA have also agreed that a certain hormones do help with pain, I can't find a dr. to read the information he sent me.