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Let's just be free to rant: No known cause for my pain

Chronic Pain | Last Active: Aug 8, 2018 | Replies (24)

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@gailb

@bunnysammy

Welcome to the Mayo Connect Community. I'm not a medical professional and I don't provide diagnosis nor medical recommendations. I do provide my experience, knowledge, and support for members. I'm so sorry to hear about your experience of pain and fatigue. You're right, this is very unusual for the age of 20. Please help us get to know you better so any suggestions we give are the most helpful for you.

- I'm wondering if you are taking any medications or supplements like multivitamins?
- You said you "run a farm," and this came on suddenly 3 months ago. Do you use any pesticides or other chemicals in your work on the farm?
- Do neighboring farms use sprays that might drift to your area?
- Have you changed to any new crops recently?
- I recommend looking at anything you may have changed just before you began experiencing the pain and fatigue.
- Are you around manure, or dust from a barn?
- Have you been bitten by any mosquitoes or other insects?

These are all possible clues that can lead to what's happening to you. When I had Valley Fever in my early 20s I experienced many of the same symptoms you have described. Valley Fever comes from breathing in spores that float in the air and come from various sources. I actually had to move from the desert in Tucson in order to recover, and I did recover completely.

Also, do you have a regular physician who you see regularly? If not, I highly recommend that you contact a general physician and possibly a neurologist. I am concerned that you are having painful joints, swelling ankles, and brain fog. I can't offer you a guess as to what the problem is, but I know enough to tell you to see a doctor/neurologist as soon as possible. This isn't normal, but there could be a simple solution that you need to take, just don't put off getting a diagnosis. If you are close to a Mayo Clinic in Rochester, Jacksonville, or Scottsdale, you should make an appointment with them. Mayo is excellent at making diagnosis, but you need to go to any close clinic anyway. Be sure to take the answers to the questions I have asked with you to the doctor/ neurologist. I hope you have medical insurance, but even if you don't, please see a doctor.

I hope you have family and friends who are supportive. We are all here for you @bunnysammy. I hope to hear from you soon.

Gail
Volunteer Mentor

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Replies to "@bunnysammy Welcome to the Mayo Connect Community. I'm not a medical professional and I don't provide..."

Hi Gail, I'll try to answer all of your questions:)

1. I take a lot of vitamins that my vitamin doctor gives me. Mainly for digestion (I have IBS) and to up my immune system.

2. We keep everything organic.

3. I don't think my neighbors do. We live out in the middle of nowhere and most people there don't do any big farming including me. It's more just animals and food to sustain my family and that's it. Some people around us do that and some don't.

4. We just started really getting everything going in the gardens. We just got starter plants but they're all organic.

5. We do have a big manure pile from the people who lived there before us. It's been there for years I guess. We started adding our animals stuff to it. It's windy out there so it's possible that gets around in the air.

6. Have a misquote rash now. They always turn into rashes for me. Maybe I'm slightly allergic? But these symptoms started before I noticed the mosquitos coming back out.

I've never had luck with my regular physician. I need to find new one. I always just book directly with specialists. She didn't believe me about my IBS symptoms and said she thinks I have an eating disorder... which I don't but even if did those symptoms should still be treated as that can cause damage to the digestive system. So I went straight to a specialist.
I actually set up an appointment with a rheumatologist because the blood test I got done for my vitamin doctor showed signs of autoimmune disorders. When she told me that I didn't really understand what that was and I didn't do anything about it for months until everything got worse recently.
I've seen a neurologist twice and they usually check me for only Brain tumors and then there's nothing so they make me try a bunch of migraine medicine (I get those too) that never works. I've talked to this rheumatologist on the phone and she seemed very caring so hopefully even if she doesn't figure it out having a caring doctor will help me get to the bottom of it.

Thanks for the concern and suggestions!!

I agree about Mayo. If there isn’t one nearby, I strongly suggest you look for a teaching hospital. I probably have 10 specialists at Emory University Hospital and Clinic in Atlanta. I’ve been going there for 33 years and have never been disappointed. I wish you the best of luck. Keep us posted.

Thank you:)