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Autoimmune diagnosing

Autoimmune Diseases | Last Active: Nov 1, 2023 | Replies (123)

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@alphacat

My friend, you need to ask for a referral to a Hematologist (for your platelets and other blood issues), and find a primary Doctor who cares. Seriously. I'm a retired/disabled nurse with multiple autoimmune diseases, and I lost my 21 year old son 2 weeks ago to what can only be described as multiple episodes of neglect or disrespect by the medical community. Sometimes we don't present the same way as a textbook. Well, that's life. People are not books. Nor do we all come with a unique owner's manual. Best of luck to you.

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Replies to "My friend, you need to ask for a referral to a Hematologist (for your platelets and..."

I've never heard of that kind of doctor. I'll look into it. I am anemic too.
I am so sorry for your loss. good luck and thank you!

@alphacat I'm so sorry for your loss

I worked in Pediatric hospice, please go see a grief counselor. It is catastrophic to lose a child; losing a child when there is the type of scenario you mentioned would be unbearable. I am so sorry for your loss; please take care of yourself. Sita

Hematologists are Specialists in blood disorders, including all components of the blood.

I'm still too raw and emotional to be fit for counceling. I think it is something you deal with the rest of your life, it just gets less acute.

How do I find discussion on Multiple mialoma

Hello @oregongirl,
I found a couple of discussions on Multiple Myeloma that you may be interested in:

Video Q&A about Multiple Myeloma Bone Marrow Transplant
-- https://connect.mayoclinic.org/webinar/video-qa-about-multiple-myeloma-bone-marrow-transplant/

Groups > Blood Cancers & Disorders > Want to talk about Multiple Myeloma: Anyone else?
-- https://connect.mayoclinic.org/discussion/multiple-myeloma-299aae/

Groups > Blood Cancers & Disorders > Multiple Myeloma
-- https://connect.mayoclinic.org/discussion/multiple-myeloma-26f521/

I found these discussions by clicking on the Search icon (small magnifying glass) at the top of the Connect screen and typing the phrase multiple myeloma in the search field. Here are the search results:

-- https://connect.mayoclinic.org/search/?search=multiple+myeloma&facet_type%5B%5D=discussion&hub_data_process=&hub_mvc_submitted_form=true&action=wp_handle_upload

John

I hear you and hear the pain. As a clinical social worker, I can tell you that you don’t have to ‘be fit’ for counseling, a good counselor can meet you where you are. Parent grief support groups are helpful as well. Love and hugs to you, I hope you can take care of yourself in whatever way feels right to you. Blessings. Sita