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bunnysammy (@bunnysammy)

Autoimmune diagnosing

Autoimmune Diseases | Last Active: Sep 2, 2018 | Replies (97)

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@51irishlass

Hi, hope I do better at this than yeasterday. John knows, I goofed up. Anyway I have several autoimmune diseases. Yesterday I only mentioned IC. It took several yrs to be formally diagnosed with Mast Cell Activation Syndrome that is affiliated with autoimmune diseases. I tried and tried to get drs to listen and not until one of them had a relative be diagnosed with MCAS was I vindicated and this just happened last week. Thank goodness I have a wonderful pharmacist who is bending over backwards to get me the correct antihistamine compounded that I won’t react to. My allergist is the one with the relative who has had trouble trying to find any meds that I don’t react to negatively. I have to have everything compounded. So, I guess my hope is that don’t give up and learn as much as you can. Also, do things for yourself that will do you no harm, but be proactive with what you can.

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Ah that sounds like a frustrating process. Good luck!
I won't give up, thank you:)

You posted correctly, @51irishlass! It's good to get more background relevant to your autoimmune diseases. You may also be interested in taking part in the MCAS discussion group, which can be found at this link on Connect:

– Mast Cell Activation https://connect.mayoclinic.org/discussion/mast-cell-activation/