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DiscussionHELP!! PLEASE!! Dent and Extreme pain in Right leg
Chronic Pain | Last Active: Jul 3, 2018 | Replies (3)Comment receiving replies
Replies to "Hello @janekhloe. Welcome to Mayo Clinic Connect! I'm sorry to hear you are in pain with..."
Hello, okay thank you.
Yes actually I have been trying to get into the Minnesota Mayo Clinic since January, into the genetics department because they have an EDS specificalist. My doctors and specialist have sent in report and letters and they still will not call me back. They told me to stop calling and they will call me.
I have also tried UCSF, their genetics doctor for EDS and their waiting list is completely full.
I’m just getting by everyday, the best I can.