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patrassi (@patrassi)

Insular epilepsy surgery – What can I expect?

Epilepsy & Seizures | Last Active: Nov 3, 2018 | Replies (12)

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@lisalucier

Hi, @patrassi – wanted to check in with you to see how your son is doing and how you are doing, as well.

I also wanted to bring in a few other members who've talked about epilepsy into this conversation, like @mmaryemc @suellipo68 @hermsenk @ndapanda and @dawn_giacabazi.

When will he have his surgery, and how are you feeling about it?

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Replies to "Hi, @patrassi - wanted to check in with you to see how your son is doing..."

Hi Lisa!
Thank you for your attention! My son is better this week, he restarted Keppra and the seizures have stopped for some days and we hope it lasts.
We will return to see his doctors in Rochester in January and we are really concerned about it.
First he is going to have some tests done at Mayo Clinic. Those tests have already been done here in Brazil, but they would like to have it done in their hospital.
Dr Wong , his brilliant neurologist, called us last month and said we will have to go , and maybe another surgery at insula would happen , according to his results.
I am scared ! We are providing money and courage to return.
We don’t know what to do.
With best wishes
Patrícia