It’s very rare. Even the doctors at the medical school here had only read about it but had never seen one. The prognosis was very grim, but I am still here eight years later. I can totally take care of myself and I drive a big SUV with my hands. The only thing that I can’t do is sweep the floor or vacuum.😁 If I break a glass, I can’t pick up the pieces. Oh, I can cook just about everything, but I can’t bring the food to the table and I can’t take the dirty dishes into the kitchen. Awww...