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Stage 3 Kidney Disease and Diet: What can I eat?

Kidney & Bladder | Last Active: May 10 2:40pm | Replies (759)

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@2011panc

@rosemarya As a volunteer mentor who has been following this thread for quite a while, you have already seen what we are going through. My strongest suggestion to you is to identify, if possible, the cause(s) of your kidney disease and build your life plan from there. Secondly, read labels and know what you are ingesting--find out what those words you cannot pronounce actually are. And lastly, make sure you can live according to your plan for life. If you cannot see yourself eating this way 10 years from now, you need to do some adjusting.

For instance, my kidney degeneration is caused by oxalates and has been greatly impeded by my adherence to a low oxalate diet. Additionally, I still maintain: 1) a low carbohydrate diet from long-term brittle diabetes; 2) low fat diet after finding out I do not assimilate fats; 3) low dairy diet; and 4) low fiber diet after diagnosis of gastroparesis, gastric retention and rapid transit. There is some crossover between the diets, but as you can imagine my diet is quite limited. However, after six years it has become habitual.

When I look at a recipe or menu I first look to see if it includes anything I cannot eat. With the current emphasis on healthy eating you might think it would be easy, but, here is a list of current popular trends that I cannot use:

any green leafy vegetable (includes spinach, kale, lettuce, etc.)
root vegetables (potatoes, yams, sweet potatoes, beets, turnips)
smoothies (dairy base)
nuts (except walnuts)
peanut butter
all berries (except strawberries)
high fiber fruit (apples, pineapple, etc.)
raw vegetables (salads, carrot sticks, celery, radishes, etc.)

Also, in my opinion, sugar is sugar. Honey, agave, cane sugar, stevia, molasses, brown sugar, raw sugar, and whatever other trendy names they are using now; all convert to dextrose, which I count as sugar.

I had to reset my mind about food. I had used it as a socialization tool. Now I have learned to eat for sustenance. If I am not hungry and a meal is not overdue, I don't take a pastry with my coffee just to make the other person/people feel more comfortable. I may have a fruit cup if one is available.

Blessings to you on your journey.

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Replies to "@rosemarya As a volunteer mentor who has been following this thread for quite a while, you..."

Hi panc, I am very new here, this is my first time. So please excuse me if I make some silly mistakes and tell me what I'm doing wrong! I'm so glad that I found this group. It's the first time I'm talking to anybody who is a kidney patient. I feel less lonely and I thank you.

I'm in stage 3 but I don't think my numbers are looking good. I had a telemedicine visit with my nephrologist today who pretty much said not to worry too much about the numbers, same as what he told me previous visit in December. I've only been with him since my first appt in November because I only learned in August that I have kidney disease.

So my egfr dropped 7 points to 31 (was 38 in December) and my creatinine went up. I have been eating mostly according to what I've been reading. A nutritionist visit did not yield much info. I feel so insecure about my diet and my numbers. Really scared. Being able to talk here has been more helpful than anything else during this journey.

I like the helpful list you have included of off limit foods. But I have conflicting info about berries (I do eat blueberries and raspberries), kale (this leafy veg appears on an okay list), I make tuna salad with 1 stalk raw chopped celery and one can goes 5 lunches, and I thought apples and pineapple are okay to eat. Now I'm really worried about my diet. I also have to follow lo carb especially lo sugar, lo fat, lo sodium. (I have had heart attacks and hard to control cholesterol and triglycerides). So now, with the new info from you, I'm so glad that I will have some specific questions for my next nutrition visit.

But I'm concerned about how my nephrologist thinks. (He does have top credentials and he teaches at the university). He seems very relaxed about my numbers, saying that numbers should be looked at as "part of the whole picture" in his words. But since August, my egfr went from 42 to 38 to 31 (3 different blood work dates) and creatinine from 1.32 to 1.44 (missing Dec. number). These number are going in the wrong direction, I thought. Am I all wrong and should just trust what he says?

Thanks and please take care and stay safe, everybody.