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Stage 3 Kidney Disease and Diet: What can I eat?
Kidney & Bladder | Last Active: Aug 26 12:20pm | Replies (800)Comment receiving replies
I am new to this post and the Mayo Clinic site. I was diagnosed with Stage 4 kidney disease last March. My kidney biopsy showed severe oxylate damage, and we don't know why. I have had genetic testing done and do not carry the gene that inhibits my body from flushing oxylates. I did discover I was on a high oxylate diet (spinach, nuts, nut butters, lentils, etc). This was a real shock as I am a competitive masters swimmer and otherwise very healthy. I have been able to stabilize my GFR, Creatinine and BUN only because of some help from EPO, ferrous sulfate and a complete change to a low oxylate diet. In two weeks last Spring, my oxylates went from 140 (three times normal) to 34 because of the diet changes. The list I am using for oxylates is from the University of Chicago on how to eat a low oxylate diet. My Nephrologist is at a loss as to why this happened to me. I am considering whether to go to the Mayo Clinic as I understand they have a Department that specializes in oxylates. Any thoughts?
Replies to "I am new to this post and the Mayo Clinic site. I was diagnosed with Stage..."
Randy, I am happy to welcome you to Connect. I am a liver/kidney recipient, but due to my sudden kidney failure, I have no experience or personal knowledge of the numbers and scores that you have mentioned. I am happy that you are getting some good information and support from member, 2011panc.
The Mayo Clinic Hyperoxaluria Center in Minnesota brings together doctors from many specialties to design a personalized treatment plan, based on the type and severity of hyperoxaluria and any related conditions.
Hyperoxaluria and oxalosis
https://www.mayoclinic.org/diseases-conditions/hyperoxaluria/symptoms-causes/syc-20352254
Hyperoxaluria and oxalosis care at Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/hyperoxaluria/care-at-mayo-clinic/mac-20352260
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@randyr I received a list of oxalates in foods from Mayo several years ago and have also responded well to the low oxalate diet. As a result I was removed from the kidney transplant list and am still being followed. Last spring I had a bizarre change in my diet when I suddenly discovered I could eat dairy again. For about 3 months I ate Yogurt, Cottage Cheese, ice cream and had bowl after bowl of dry cereal with milk. Then suddenly it was over. What I did not realize until later was that the dairy is not recommended for kidney patients. My oxalates were sky high in July, but have now returned to 2.1 with a normal of